PCOS anyone?

[Macaela25]

PCOS by itself does not necessarily cause the inability to carry....99% of the time, pregnant women with recurrent pg loss are tested with a recurrent loss panel and found to have underlying blood disorders.

Both my endo and maternal fetal specialist agree that my three m/c were due to high testosterone and low progesterone levels that all resulted in loss before the 10th week. According to them and several studies I've read, that's the main cause of m/c in PCOS sufferers. I'll ask my endo when I go back this summer, but I don't recall ever having abnormal readings like you referred to.

[disabledvetswife]

Both my endo and maternal fetal specialist agree that my three m/c were due to high testosterone and low progesterone levels that all resulted in loss before the 10th week. According to them and several studies I've read, that's the main cause of m/c in PCOS sufferers. I'll ask my endo when I go back this summer, but I don't recall ever having abnormal readings like you referred to.

They're not normal tests that are run, they are a genetic panel that is expensive and has to be specifically ordered. Most all PCOS patients have high testosterone, so that is not a cause of m/c - I have high testosterone and have never m/c (thankfully)....however, I did not have low progesterone.

Perhaps it is because most PCOS patients aren't monitored until after they've had m/c or were unable to conceive. I was unable to conceive, then sought treatment and my RE automatically put EVERYONE on progesterone support, irregardless of whether they had low progsterone or not.

Who knows, all I know is it's MISERABLE and I hate that we all have to go through our respective experiences!!!

[cpaige]

There needs to be more research and testing done for this. It is almost like it doesn't exist in the medical world.....when in reality it is very real

[jamadibobb]

I'm normally a lurker and have never posted before but this hits close to home for me....

Has anyone tried the extended released metformin? I am on 1500 mg and no stomach issues at all even though they were horrible when I was on the regular.


*My story* Tried for 5 years with clomid and shots. Stopped all that and went on metformin and got pregnant 1 1/2 months after starting 1500 mg. Almost lost my beatiful baby girl due to low progesterone so I had to stay on supplements for 3 months...now she is a heathly and happy 7 month old!

[manders13]

I would like to report...

That at 11:35 tonight, I FINALLY STARTED MY PERIOD!!

After taking 2500mg of metformin extended release (being very sick the first 3 weeks) and 1 round of Prometrium.

What's weird about it, is i was posting in another thread about a diaper deal and that i asked DH if i should start stockpiling diapers thinkin he'd give me a look like "uhhh seriously Amanda?" but he said yes it's a good idea.. and like 20min later.. it happend!
i felt sick to my stomach and yea. anyways! LOL

So there is hope ( well i'm just happy to have my period) i'll figure out in a month if im actually even ovulating or not!

[deb60]

Myself and both dd's have this. Theirs more severe than mine. Metformin ER was the saving grace for DD #1 along with a great Endo Fertility Doctor team at the U of M. Shes due in 4 weeks. DD # 2 is still trying to get things straightened out and will be seeing the same team as DD #1 once they move back here. Clomid and the others have done nothing for her. So there is hope. Find a good team and go with it.

[ca2003]

I also have PCOS. Was diagnosed about 1 year ago. I was on Metformin for about 9 months but in January I started a new job and lost my routine in taking it. I want to schedule another doctors appointment before I go on it again and I just realized my GYN specializes in Reproductive Endocrinology & Infertility.

I was diagnosed in my last semester of college. I went to the doctors on campus because I had a bad cold and hoped they could give me something. For whatever reason the nurse questioned me about my last period (nearly fainted and told me I MUST be pregnant when I said it had been two months ) and ordered a pregnancy test. After the test was negative the doctor ordered blood work for me. The doctor prescribed Metformin, spironolactone, and the BCP. She also had me taking Vitamin B12 and Folic acid for headaches (I have always got bad migraines). I stopped taking the BCP and spironolactone last summer because I ran out of refills on the spironolactone and I really don't like being on the BCP.

Being just on the Metformin was making my periods more regular, every 4-6 weeks. I think I lost some weight when I first started taking Metformin, but then I worked at a job from July - January that was extremely boring and I ate all the time and gained about 15 pounds. Since starting my new job I have been eating less and healthier and I am trying really hard to keep up going to the gym.

Since I stopped taking it in January I just got my first period since January. I am going to try and call my GYN this week to schedule an appointment because I know that I need to be back on the meds, I just hate taking stuff on a daily basis.

I don't think I asked enough questions about the condition at my GYN visit last year so I am going to make sure I go with questions. One of my big concerns is being able to have children in the future.

[lampe0802]

My sister was told that all her testing was coming back looking like PCOS when she was like 16. At that point they told her she would prob never be able to get prego on her own. She is now 21 and just announced that she is prego...on her own! None of us have ever done much research on it. She has never been on any meds for it but they did put her on bcp to help regulate/make her have periods. She doesn't have any medical and has not been to the doc yet but believes she is prob about 6-8 weeks along. I would greatly appreciate any advice for her. I'm nervous about the talk of low progesterone.