Here you'll read about my budgeting and obsession for saving money, as well as my daily life and anything random that takes hold of me and I feel that I need to write about it. 
Update on my labs - Dr. wnts to send me to a rheumatologist
Posted 01-25-2009 at 02:04:06 AM by doulas3babes
I went to the dr. on Fri., Jan. 16 to get the results of my bloodwork from 12/31. The dr. went over everything with me and he agrees with me in thinking that it could be SLE (systemic lupus). Sorry I haven't been able to post sooner. I ended up back at the dr. on Wed. the 21st b/c of a throat infection and it was difficult just to eat and swallow b/c of the pain.
He wanted to send me to the Cleveland Clinic, but that's over a 6 hr. drive from here one way. And right now, I can't afford that, nor do I have someone to watch my 3 kids. BUT, we do have 3 rheumatologists here, and I have an appt Feb. 19, which is GREAT b/c I figured it was gonna be longer than that (as did my dr). If I dont' get any answers there, then my doc is gonna send me to the Cleveland Clinic.
I have mixed emotions. I am scared out of mind and yet relieved to FINALLY be getting some answers as to why I always feel the way I do. I was diagnosed with fibromyalgia some yrs back, but there's always been more than what the 'classic symptoms' of that are. I have bad days and worse days. There are never any good days. I feel like I am just barely getting by each day, all filled with pain or worse pain. Honestly, it's really starting to wear on me and is unfortunately took out on my dh and my kids at times and I hate that about myself. I wish this would all go away and I didn't have to feel the way I do. I feel like my life is just passing right by before my eyes. Like I can't actively participate in my own life, like I have to be a bystander and just watch from the sidelines.
My babies deserve better than a mommy that can't function to her fullest, I deserve better than to feel like this all the time.
He wanted to send me to the Cleveland Clinic, but that's over a 6 hr. drive from here one way. And right now, I can't afford that, nor do I have someone to watch my 3 kids. BUT, we do have 3 rheumatologists here, and I have an appt Feb. 19, which is GREAT b/c I figured it was gonna be longer than that (as did my dr). If I dont' get any answers there, then my doc is gonna send me to the Cleveland Clinic.
I have mixed emotions. I am scared out of mind and yet relieved to FINALLY be getting some answers as to why I always feel the way I do. I was diagnosed with fibromyalgia some yrs back, but there's always been more than what the 'classic symptoms' of that are. I have bad days and worse days. There are never any good days. I feel like I am just barely getting by each day, all filled with pain or worse pain. Honestly, it's really starting to wear on me and is unfortunately took out on my dh and my kids at times and I hate that about myself. I wish this would all go away and I didn't have to feel the way I do. I feel like my life is just passing right by before my eyes. Like I can't actively participate in my own life, like I have to be a bystander and just watch from the sidelines.
My babies deserve better than a mommy that can't function to her fullest, I deserve better than to feel like this all the time.
Total Comments 4
Comments
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I am so sorry to hear all that is going on with you. I do pray that they find out the exact treatment for you so that you can be the mom and person that you so rightfully deserve to be. Whenever you get to feeling sad or depressed just start thinking about the day that you kids were born, how happy you were and delighted to have them in your life. Take care and please keep us informed of what the dr says. You are in my thoughts and prayers.
Posted 01-25-2009 at 03:30:27 PM by dwshrty77roc
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I cannot even imagine the pain you are going through... physically and emotionally. Hang in there. I'll be praying for you.Posted 01-25-2009 at 08:35:25 PM by FreckleTown -
Hi, I have RA and have had it for 4 yrs.
What did the Dr's say and did you do the test for RA?
Its extremely impt to start on meds.. ASAP..
I have some friends w/ lupus.. they're similiar in some ways.
I'm always telling people.. its Not ARthritis..
its RA.. bc w/ RA.. you get the RA flu.. feeling like you have the flu, even when you don't and omg, the fatigue.. is unreal..
Find some forums, they can really help.
Wish you the best .. are you in Cinti??
Formerly a Cinti/ Graters girl!! lol
so whats going on? ...
Concerned..Posted 01-26-2009 at 01:20:12 AM by Whispered -
Thank you all for your prayers and concerns, they really mean alot to me.
Right now, it's just a waiting game.
Whispered - They did test me for RA, it came back neg. So that ruled that out. And I was tested for a whole host of other issues as well, all of which came back neg. So with the positive ANA, and my other symptoms, they are leaning more towards the SLE b/c I fit the "criteria" for it.
Thank you again everyone! I will update as soon as I know something further.Posted 01-29-2009 at 06:00:16 AM by doulas3babes
